Insomnia (Mainly for the benefit of Sarcoidosis Sufferers)
For as long as I
can remember, it has always taken me a while to fall asleep. My parents
attributed it to a very active imagination. My brain seemed to have needed a
while to process events of the day, upcoming events and even just to work
through spontaneous thoughts as they occurred before it finally decided to
switch off into the land of nod. Even as a kid, when sharing a room with my
brother, I marvelled at how he fell asleep as soon as his head hit the
pillow.
I must have had the bugs even then, as
I had psoriasis – even if it was fairly mild as a kid.
I have always had a pretty full-on
life – lots of energy, lots of enthusiasm and lots of fun. I always took on
responsibility; was always the person to arrange to socialise and I was
never ever bored.
Nothing changed in that respect as I
got older. I married at the age of 21; I continued to learn and educate and
ended up with good jobs (an Optometrist back then) and I performed always to
the best of my ability.
Then one Sunday evening, after a team
building weekend with my work, back in 1989 (I was 26 years old then) – I
went to bed. I was exhausted.
But my brain went through its normal
process of contemplating things as usual – and it didn’t stop. I started to
get a little concerned by about 4:00 AM as I knew I had a full day at work
the next day. And then the alarm clock went off and I knew that I had not
had a wink of sleep. I felt awful, but I shrugged it off as a strange
occurrence; showered and got through a day of work.
On Monday evening, I told my wife that
I was going to have an early night as I hadn’t slept. And, hey, guess
what…same again. Alarm clock went, up, showered and off to work – decidedly
frayed around the edges.
That night, I thought…right!! Time to
share a bottle of wine with Helena and then I’ll have no problem. I went to
bed, more than exhausted, but relaxed from the wine. But my damned brain
wouldn’t rest. Alarm clock went – not a wink of sleep under my belt; had a
shower and off to work, basically on autopilot.
It was Wednesday evening…this time, I
was going to tackle it with Gin – and I did it with style. I went to bed and
the bed span! Did I get to sleep – the hell I did! I had this horrible
buzzing sensation in my head all the next and I found it very hard to focus
on anything at work.
Next night, no booze – relaxation
techniques (I was as tense as piano wire). No good – I looked at my wife
snoring next to me and wondered if something was seriously wrong with me – I
was feeling very desperate – had I gone mental? I took a couple of pain
killers for the buzzing in my head – but really it was in the hope that they
would somehow knock me out. Nope! The alarm clock went and I smashed it with
a right hook that sent it crashing against the wall, rendering it back into
its atomic state. Helena was a bit startled and suggested that I take a day
off and go to the doctor.
The doctor told me that I must have
gotten myself out of rhythm and prescribed some sleeping pills. I was
desperate and asked him if he was sure that they would work. He was and
assured me that what I was going through was very common…but I asked him
“what if they don’t work?” He said, “Take another.” What if they still don’t
work? “Take a third!” He must have thought I was a fruitcake!!
My appointment was in the morning and
I promised myself that I wouldn’t take the pills until it was time for bed.
I wanted to get back into a normal rhythm.
That evening, at 7:00 PM I took a pill
and went to bed. I waited 20-minutes and nothing happened. My head was still
buzzing. I took a second pill and waited another 15-minutes. Nothing
happened and I was getting very very scared – I just couldn’t take another
sleepless night. I took a third pill and waited 5-minutes – nothing. I got
up and joined my wife in the kitchen. She was eating cheese and biscuits and
I told her with tears streaming down my face that the pills were useless.
She told me to sit down and have some
cheese and biscuits with her – she made one for me and I suddenly fell
asleep face down into the garlic cheese. She hooked her arms under my
armpits and dragged me off to bed – I slept for 18-hours.
From that night onwards, it was very
rare that I got a full night’s uninterrupted sleep. I actually started to
really fear my bed and bed-time as I never knew how it would turn out. On a
bad night, I would not get a wink but mostly I would seem to fall asleep
between one and four hours before I was due to get up again. If I fell
asleep early, I would usually wake up again a couple of hours later. If the
phone ever rang once I had fallen asleep; that was it – I knew that I would
be awake all night.
The strange thing is that I felt that
I would never have any problem falling asleep at any other time but
bed-time. Falling asleep on the sofa during a film was not a problem – but I
would always wake up. I could even power nap at lunchtimes! The doctors all
thought it was psychological – maybe it was.
It was a very special kind of torture
lying there, clear awake, knowing that I had a full packed day the next day
– one that would require my full concentration. I couldn’t let people down –
not at work, and not at any of my other pass-time activities.
But I learned to cope – I learned to
function well on the four to five hours of sleep that I managed to scrape
together. If I couldn’t fall asleep within a couple of hours, I would get up
and do some study until I started to nod off over my keyboard and then drag
myself off to bed – usually successfully. This was my strategy for many
years and I managed to get myself a second degree, a post graduate diploma
and a master’s out of it, studying part-time. I would avoid all sleep
medication but would take 5mg of Valium if I had something extra important I
had to do the next day.
This was my reality until I started
the MP in 2003. It was then that everything changed. All of a sudden, I
could fall asleep immediately after going to bed and it would be a full
uninterrupted eight or nine hours sleep – every time. I truly felt like a
new person, and it was blissful! Oh, sure, I would have the odd herxy
interruptions but nothing major. At first I didn’t trust it – it was too
good to be true – I was sure the insomnia would return. But it has now been
20-months of good regular sleep and I believe that it is for keeps.
I know that everybody reacts
differently to MP, but this is how I have reacted and I wonder now how I
ever coped. I get tired these days when I don’t get my 8-hours.
Give me back my coughing; give me back
my breathlessness; give me back my memory problems; even give me back my
kidney stones - anything rather than letting my Insomnia return. Thank you
MP!
PS...I
read a really good article about insomnia written in Swedish. It likened
falling asleep to catching a train – a train that takes you to the land of
sleep…the sleep train.
For normal people, the train stops at the station and waits for the
passenger to get to the station to board it – for insomniacs, the train
arrives and leaves so fast, that if you are not there at exactly the right
time, and if you are not fast enough to board it – you miss it. You have to
hang around and wait for the next one – you never know when it will arrive,
and sometimes it just doesn’t come. This is why, they say, that establishing
a routine that you strictly adhere to before bed (your journey to the
station) is very important.
My only reservation to this analogy is that, in my case, the train didn’t
always stick to the time-table – and, very often, even if I did catch the
train, the ride would only last a couple of hours. I did like the analogy
though.
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