Update December-2004 (Mainly for the benefit of Sarcoidosis Sufferers)
Hi all Sarcies!!
Holy shit, what a year!! Here is a summary:
All this despite being the sickest I have ever been in my life, feeling on many occasions as if I would not survive the Sarc. It has been a year of sheer hell, health-wise.
This is why it is so sweet to be able to announce that I now believe that I have beaten this horrible illness:
After three months on Phase III of the protocol, I am just about symptom free.
And guess what - the psoriasis
that I have always suffered badly from is all but gone. That has never
happened to me before and is a real unexpected bonus!
I have heaps of energy and I realise now that I haven’t felt this good in
way over a decade. Not only am I grateful; my wife, children, family,
friends, karate students and WINTEC students & colleagues are also extremely
grateful…
…Grateful to the genius and determination of Dr Trevor Marshall and his team at SarcInfo. The only appropriate recognition for you people is a Nobel Prize!!! May it happen sooner rather than later!
…Also grateful to my wife and
family whose unfailing support has kept me from giving up in despair – it is
a shame there is no Nobel category for this – you so deserve it!!
Looking at all the treatment alternatives, you have nothing to lose to give
it a shot – and everything to lose by walking away from this opportunity.
You are welcome to contact me if you want to probe more into my experiences.
My next physician visit is in Jan 2005. Boy is he going to be surprised. It is a year since my last visit and I almost had to be stretchered in to that one.
One proviso though, just because I am symptom free, does not mean that the disease is gone. Trevor suggests at least a further year of treatment after all symptoms are gone. Herx may re-occur from time to time as new colonies become exposed to the treatment. And, as we have a genetic pre-disposition for this crap, a yearly maintenance dose is recommended to prevent relapse.
I shall keep you informed.
Cheers and Merry Christmas!
Guss
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