An Overview of Sarcoidosis

This page is aimed at informing the newly diagnosed Sarcoidosis sufferer as to the current state of play in terms of what is currently known about Sarcoidosis. It is current as of August 2005 and I will try to update it as more becomes known.

I have spent the last 10-years researching this disease as both my wife and I contracted Sarc – Helena was diagnosed in 1995 and I was diagnosed in 2002 through a lung biopsy. The bad news is that Doctors know next to nothing about this disease – even the physicians (the so-called experts) are completely ignorant.

Many people throughout NZ and Australia have contacted me (many of whom are martial artists) regarding Sarcoidosis and I have been able to put them in touch with medical researchers in the USA who have made some ground-breaking progress – there is actually a cure. That is the good news.

To find out more, I would very strongly urge you to visit http://www.marshallprotocol.com in order for you to educate yourself about what is and what is not known about this horrible disease. It will take you several weeks of reading and I am more that willing to help you through it if you need clarification. This research is still controversial, but the science behind it is quite sound – it will take another ten years or so before what is actually known filters down and becomes mainstream medical practice.

Your doctors will tell you the following:

  1. Nobody knows what causes Sarc – this is not true…Sarcoidosis is caused by multiple infections of Cell Wall Deficient bacteria (also known as Micobacteria) that are very small and invade the immune system.
  2. Sarcoidosis affects most people only in the lungs – this is also not true…Sarcoidosis is a systemic disease that affects every organ in the body.
  3. Sarcoidosis is usually self-limiting (in other words: it is very likely to go away on its own) – this is not true…a recent study conducted by the NIH (the National Institute of Health) in USA (called the Access Study) concluded that there has not been one documented case showing spontaneous remission.
  4. That the only available treatment is Prednisone, Methotrexate and Thalidomide – this is not true…these drugs are extremely toxic and even the short term side effects are very likely to do you severe and permanent damage. If you are on these drugs, you must consult your doctor and get him/her to wean you off them as soon as possible. If they don’t cooperate, get your GP to do it. All these immuno-supressant drugs will make your condition worse – there has not been one documented case of them providing sufferers with a long term remission – ask you physician to provide you proof. All these drugs are considered “off label” in the treatment of Sarc – i.e. they are not sanctioned by the pharmaceuticals for the treatment of Sarc. Many physicians will be able to give you anecdotal evidence of how these drugs have helped people, but that is because they have done no long term follow ups of the people that they have supposedly helped.
  5. That Sarcoidosis is very rare – not true…my wife and I have had it; and I know 5-people in my close circle of friends who have developed Sarc. This fact should be statistically impossible given that doctors currently believe Sarcoidosis affects 1 in 200,000 people – recent studies have shown that up to 25% of the population are afflicted with th1 immune disorders (Sarcoidosis being one of them).
  6. That Sarcoidosis is rarely fatal – not true either…it is always fatal. It will take you around 20 - 40 years to die from it, and you quality of life will slowly/quickly decline. The reason that the stats on Sarc fatality are so poor is that cause of death is always attributed to something else i.e. heart failure, kidney failure, brain disorders, liver failure etc etc

I am very very sorry if this is not what you want to hear and if you are alarmed by this. The cure consists of long term low pulsated doses of very safe anti-biotic combinations (I will give you details if you call me – or you can find them out for yourself on the Marshall Protocol website) in conjunction with a very safe drug called Olmesartan Medoxomil at 40mg three to four times a day; avoidance of light (especially sunlight – you will need to wear very special sunglasses called NOIR and keep yourself covered up) and finally you will need to cut out all vitamin D from your diet. You will also need to find a doctor (GP) willing to monitor your progress and prescribe the medication.

Major symptom resolution will take around a year, but the full cure takes something in the order of three years. The treatment is not easy due to something called the Herxheimer reaction which is a reaction that your body will have to toxins released (called cytokines) into your blood when the bacterial infections die off. These micobacteria are very hard to kill, but it can be done.

Sarc gives you symptoms, some of which most doctors don’t associate with Sarc – in my case, they were as follows:

There are many more symptoms reported by other sufferers, but I didn’t get them.

I have been on the protocol for two years now; I am as good as symptom free and have resumed full training. I have helped about 6-people in NZ to get onto the protocol, all of whom are progressing very well. There are many more on the protocol in Australia and around 1,000 people in the USA, including many doctors and other health professionals themselves.

If you want to contact me, do so using guss@bugeikan.com or my cell phone listed below or my home phone 07-843 9083.

Good luck and get well.

 

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